EDAN achievements

- Participants in the EDAN event held 11-13 February ahead of the WCC's 9th Assembly in Porto Alegre, Brazil
1. To maintain the fellowship forged between diverse disability advocates and, where necessary, extend it to include other interests not so far represented
The disability advisers at the WCC's 8th Assembly in 1998 remained in agreement on EDAN's purpose and operation and, as regional coordinators, continued to carry responsibility for much of EDAN's work up until the most recent, WCC 9th Assembly in Porto Alegre, Brazil, in February 2006.
As regional coordinators, they formed a global network that continues the vision through sharing and fellowship. Besides keeping in touch, the group met three times after Harare - in Nairobi, Kenya, in December 1999, in Cartigny, Switzerland, in October 2001, and Lunteren, The Netherlands, in 2003 - and finally, in Porto Alegre, Brazil, during EDAN's pre-Assembly conference.
An "energizing moment when each of us have been challenged by what others are doing," the meetings shared what was taking place in the regions, prepared plans for the next two years, and evaluated the work of the coordinating office.
In addition to its global network meetings, the EDAN Reference Group - a small group assisting the staff to envision the operations and to set goals - met twice in Geneva and once in Bangkok, Thailand.
Networks were established in all regions except the Pacific and the Middle East (see following paragraph). Some proved very vibrant and active. The Latin American Network, for example, endeavored to maintain good relationships with the regional ecumenical organization, which proved to be a effective way of working. Contacts were maintained with the All Africa Conference of Churches, the Christian Conference of Asia, the Middle East Conference of Churches, and the Conference of European Churches, as well as with the National Christian Council of Churches in the USA and their affiliate National Disability Committee. All the regional ecumenical organizations have been visited by EDAN staff at one time or another.
In an effort to establish an operational network in the Pacific, an acting coordinator was appointed, Because she was not a native of the region, however, she was hampered by a lack of grassroots contact and support. A volunteer coordinator from Fiji with experience in working with the churches and the secular disability movement has now been identified and, hopefully, this network will soon become a reality.
As far as a Middle East network is concerned, the volunteer coordinator had to resign due to personal problems. A consultation with new WCC Middle East regional desk staff is planned to explore other possibilities of setting up a network in this region.
A quarterly bulletin, the EDAN Newsletter, shares news on the work and experience of the network among its members and also with churches, regional and national ecumenical organizations as well as with a host of national and international disability organizations. The Newsletter has proved an important communication tool with all the regional networks receiving copies and sharing what they are doing.
2. To engage in theological reflection on disability in order to provide a foundation for church engagement
In terms of theological engagement and reflection, EDAN with the assistance of the WCC Faith and Order team worked for three years to produce a WCC policy statement entitled "A church for all and of all". This document, which was commended to all the member churches for study, reflection, feedback and action, highlights the fundamental theological issues that affect and, if addressed, would challenge the church to become holistic and inclusive in its relationship to disability issues.
Available in English, French, German and Spanish, the document continues to be circulated to member churches, individuals, national and regional ecumenical organizations and is being shared with secular disability organizations.
In order to stimulate discussion on this interim statement, EDAN is working with the WCC's Mission and Ecumenical Formation team to develop accompanying study guides for use in Bible study groups to help them reflect on disability as a church agenda.
Realizing that greater impact would be achieved if disability concerns were addressed in ministerial formation, EDAN and the WCC's Ecumenical Theological Education desk is attempting to engage theological institutions in reflections on disability.
Together, they developed a co-curriculum in disability studies to prepare ministers for pastoral work with persons with disabilities. A prototype curriculum, subject to adaptation by different institutions, was produced at a consultation with representatives from different regions and theological institutions (including St Paul's United Theological College, Kenya, the Asia Theological Seminary in the Philippines, the United Theological College of the West Indies, Jamais, the Stockholm School of Theology, Sweden, and the Lutheran Seminar, Brazil).
Two other consultations to pre-test the document have taken place in Africa and a third one will take place in India in May 2006. In the meantime, two colleges - St Paul's and the Stockholm theology school - taught the curriculum for the first time in September 2005.
3. To work with and advise the WCC on its work to improve conditions affecting disabled people in the churches globally
One of EDAN's concerns was how to ensure that as well as the Justice, Peace and Creation (JPC) team, other WCC teams would take on the concern of disability. To that end, it worked with the Faith and Order, Ecumenical Theological Education, Scholarships, Diakonia and Solidarity, and International Affairs teams. It also worked with the Economic Justice, Women, and Caring for Life projects within the JPC team.
This effort was very rewarding : not only did they take the disability concern aboard in their thinking and actions, but they also funded different EDAN regional activities, which would not have been possible otherwise.
EDAN's work was also greatly enhanced by financial assistance from other ecumenical development agencies and church organizations, including ICCO of Netherlands, Bread for the World of Germany, the Lutheran World Federation and the United Church of Canada.
4. To deepen cooperation with and among churches, national ecumenical bodies and regional ecumenical organizations in respect to inclusion and full participation of people with disabilities in their ministry and mission
EDAN's Nairobi secretariat is very small, and without the cooperation of churches, national and regional ecumenical organizations (REOs), little would be achieved. We have therefore continued to deepen cooperation with these structures. A good example is work with the All Africa Conference of Churches (AACC), which was the first to enable EDAN to participate in and make a presentation at its general assembly (Cameroon, November 2003), and which is now our official host in Nairobi. The Latin America Conference of Churches (CLAI) was the first REO to organize an EDAN consultation (July 2001, Quito, Ecuador) and it has since remained very supportive of EDAN work.
The Caribbean Conference of Churches welcomed an EDAN delegation, and conducted a comprehensive tour of disability programmes and initiatives by both churches and secular organizations in both Jamaica and Trinidad and Tobago. The delegation had very fruitful discussions with various churches and church-related groups on how disability work in the region could be taken forward.
The Christian Conference of Asia (CCA) in conjunction with the WCC Asia Desk has organized and financed two disability consultations within a period of two years in Thailand. In addition, they financed the participation of more than ten persons with disabilities (including EDAN staff) in their general assembly in Chiang Mai, Thailand, in April 2004.
The Conference of European Churches (CEC) has established links with our network in Europe, and there is great potential to work together and especially to reach parts of Eastern Europe where we still do not have any impact.
With the help of the WCC regional desks, links are still being forged to initiate discussions with the REOS in the Pacific and the Middle East. A consultation will took place in Lebanon in June 2006 and the decision was taken to create a cadre of disabled advocates to maintain relationships and to initiate activities in this region; it is expected that a similar consultation will take place soon in the Pacific (see paragraph on the Pacific and Middle East under "1. Fellowship", above).
We have also worked with many national councils of churches, especially in identifying participants in our various activities. Contact with churches is mainly through our Regional Network Coordination and, though slowly, we are making some impact. We will need to strengthen regional work to encourage inclusion, participation and active involvement of persons with disabilities in the spiritual, social, economic and structural life of the church.
5. To broaden the process of information-gathering in support of disability concerns and advocacy efforts
Gathering and disseminating information is EDAN's core business. While initially intending to set up a resource centre at the Nairobi secretariat, it was realized that access from different regions will would be a problem. So, as well as building up a small reference collection at the secretariat, EDAN shares information on resources through its quarterly Newsletter. It refers queries to others if the secretariat lacks the information required, and circulates major documents like the Interim statement.
The EDAN Newsletter is published as both a means of sharing experiences and as an advocacy tool. The ten Harare Assembly disability advisors agreed on a publication that would appeal to churches, national and regional ecumenical organizations but, at the same time, inform on what other organizations in the disability field were doing. They also recognized the need to expand the information-sharing forum to include other persons with disabilities working closely with the churches and other organizations of persons with disabilities who had not been at Harare. The 24-page EDAN Newsletter was the very first attempt to do that.
It has been published quarterly since January 2000 and posted on the WCC website. Its print-run has increased from 500 to 1000 to 1500 copies per issue. It is hoped that French and Spanish versions will be published soon. Readers include disability advocates, churches, theological institutions, national and regional ecumenical organizations, organizations of persons with disabilities, and individuals interested or working in the disability field.
The EDAN Newsletter has
- revealed the existence of many initiatives for support and recognition of the cappersons with disabilities are able to make in an inclusive church and society;
- provided a channel for information sharing on such initiatives for the benefit of church and society, as well as for persons with disabilities who can learn from each other and share experiences;
- endeavored to share information on technological developments and related skills, educational materials and opportunities as well as advocacy efforts with the aim of increasing possibilities for social and economic re-integration of PWD;
- allowed Network members to maintain fellowship and information-sharing among themselves and with an expanded network of individuals and organizations involved in disability service and advocacy work;
- provided a forum for theological reflection on disability, brought alive discussion on the theology of the body, inclusiveness and a new concept of being a church;
- The Newsletter attempts to raise awareness on the dignity, and to favour equal opportunity for PWD. Sharing information on United Nations Standard Rules on Equalization of Opportunities for Persons with Disabilities, and on other UN initiatives that address the human rights of PWD, are central to this effort. (The aim is to create awareness in communities and governments on the needs, aspirations, capacities and limitations of persons with disabilities (including the right to decent and gainful work), encourage positive attitude change towards children, youth, women and adults with disabilities.
In addition to the Newsletter, EDAN has published
- "INTERPRETING DISABILITY" by Arne Fritzson and Samuel Kabue
(WCC Risk Book Series,available from the WCC publications department) - Articles by persons with disabilities who are EDAN members in the WCC's ECUMENICAL REVIEW (January 2001) and in ECHOES MAGAZINE (WCC Justice, Peace & Creation Team, July 2000)
- Two articles and a book review in the JOURNAL OF DISABILITY, RELIGION AND HEALTH (Howard Press, USA). One of the articles is on the healing Mission of the Church and the other is on the WCC Work on disability.
6. To take initiatives that will express the willingness and capacity of disabled people to help further the disability agenda in the life of the church globally
Coordinating and envisioning EDAN's work has remained the responsibility of persons with disabilities. The "Harare team" remained united and actively involved in achieving EDAN's objectives. Regional coordinators have shown much dedication and brought in many others to assist them in bringing this agenda to the churches. Although the planning was done through the Reference Group and the Global Network team, a concerted effort was made to involve the church and other agencies at the detailed grassroots planning and implementation levels.
UN Disability Convention
A significant aspect of work with non-church actors has been EDAN's participation in the development of an Integral International Comprehensive Convention on the Promotion and Protection of the Rights and Dignity of persons with disability at the UN.
This topic was discussed during the August 2003 WCC Central Committee meeting. Churches were called upon to urge their governments to support the process, and EDAN was requested to find ways of getting involved.
Two possibilities emerged: participation as an NGO (the WCC having observer status at the UN Human Rights Commission); or as part of a government delegation, which would allow us to make intervention on the floor, something we could not do as observers.
After the Kenyan government agreed to incorporate us in their delegation, on condition that we would meet all our expenses, EDAN participated in four two-week sessions of the Commission. The EDAN Caribbean regional coordinator also participated in one of the sessions as part of his country delegation, with EDAN's assistance. This effort was jointly financed by the WCC's Churches Commission on International Affairs (CCIA) and Justice, Peace and Creation team (JPC), the United Church of Canada and Norwegian Church Aid in Nairobi. We received a lot of support all through from the WCC UN and New York offices in terms of logistics.
[Note: The UN Commission on Human Rights was replaced by a new UN Human Rights Council early in 2006.]
7. To analyze and address the relationship of disabilities to systematic violence, war, and human rights violations
EDAN's input to addressing systemic violence has been through participation in the WCC Decade to Overcome Violence (DOV). It has a representative on the DOV Committee, worked closely with DOV during the WCC's 9th Assembly in Porto Alegre in February 2006, especially in planning a "Mutirao" on violence and disability, and prepared a Bible study on disability and violence to be published in a DOV Bible studies series.
Participation in DOV has opened wider horizons in thinking about violence and disability. General trends were analyzed, and the connections between violent situations and disability shown.
With disability on the DOV agenda, EDAN plans to conduct case studies on the relationship between disability and systemic violence, war and human rights violations, and to help develop education materials on the effects of violence on PWD. We have already started to collect stories on PWD who have made a significant contribution to creating a culture of peace and non-violence.



